What we do
We are a professional team of a specialist paediatric, qualified nurses, registered physiotherapists and clinical support workers dedicated to providing quality care for children and young people who are dependent on machines and equipment to help them breathe. We enable children to be cared for within the nurturing safety of their family home and their local community.
We provide a service which is tailored to the needs of each child (package of care) and their family in liaison with the referring hospital, this is in agreement with the funding provider (commissioners) and in line with the Quality Standards for Services providing Long-term ventilation for Children and Young People (December 2013).
The following is not an exhaustive list but the tailored service provided includes some of the following.
- Facilitate the provision of equipment to support the child and family at home.
- Partnership Agreement with Parents or Legal Guardians to facilitate the cohesive care package in partnership with the family.
- Clinical support workers are specifically trained to meet the medical needs of the child and facilitate their full potential and work on a shift basis within the family and educational settings.
- Regular assessment and review of the child or young person’s needs is carried out to provide a needs specific care plan in close and regular liaison with the child and family
- Encourage, support and enable children, young people and their families in achieving the balance of a normal family life.
- Enable all children and young people to reach their full potential in all aspects of Every Child Matters 2004.
- Non-judgemental holistic care that is respectful to cultural and religious beliefs.
- Emotional and empathetic support for the family, whilst maintain professional relationship and boundaries with the family.
- Promote the normal development in all areas through creative play and supporting the individual in various educational settings.
- Promote the welfare and safeguarding of children and young people in accordance with the Children Act 1989
- Respect the confidentiality of a private family life as the Human Rights Act 1998.
- Work collaboratively across agencies and services to enable minimal admissions to local and tertiary hospitals for acutely unwell children
- Dedicated training coordinator who facilitates up to date evidence based training for staff and families in line with National and local policy.
- Designated named nurse for each family to help support and coordinate the continuity of their package of care.
Depending on your child’s needs, we will support your child at home, within their educational setting, to hospital appointments, on outings and day trips and if they become inpatients at The Royal Blackburn Hospital.
How to access the service
We are notified when a child within our area is placed on breathing support by hospitals such as Alderhey or Manchester Childrens Hospitals.
Where to find us
Our team work in the community but are based at the Royal Blackburn Teaching Hospital.
Helen Lockyer - Matron
7:30am - 5:30pm Monday to Sunday